The Verdict Is In11:19:00 AM
If you've been following me on Twitter or Facebook ,or even here, you know that I've been off the past few months. Not just off b...
If you've been following me on Twitter or Facebook,or even here, you know that I've been off the past few months. Not just off but uncharacteristically quiet. This is what happens when I'm sick, I turn inward and just try to get through what I'm going through.
The tl:dr (that's "too long; didn't read") of my situation is that I've been sick for 8 months. It started suddenly on September 1, 2015 and it wasn't until May 1, 2016 that we zeroed in on what's wrong. It's been 8 months of feeling like a zombie -- low energy, terrible reflux, pain in my side (among other symptoms).
We (hospital, Gastro 1, Gastro 2) ran every diagnostic/test we could think of to figure out what was happening in my gastrointestinal tract that was making me so sick (HIDA, ultrasound, CT, EGD endoscopy, gastric emptying test (yay! nuclear scrambled eggs!), endoscopic ultrasound, and was scheduled for a 24-hr esophageal pH test).
But I finally caved in to my friend J's offer of help. His girlfriend (S) is a doctor and wanted to help. I didn't want to feel like a burden or that I was being "that person" who talks only medicine with a person who just happens to be a doctor. But man, I wish I hadn't waited.
She zeroed in on something on my EGD results:
The biopsies show a non-specific response that may be the presenting manifestation of celiac sprue in some patients. If celiac sprue is suspected, suggest correlation with celiac studies to help in the evaluation of the disease process. Other etiologic considerations include toxic reaction to gluten, NSAID use, and infection (including Helicobacter infections in the stomach, bacterial overgrowth, viral gastroenteritis), non-celiac or tropical sprue, autoimmune enteropathy, medication effect (including NSAID's and possibly olmesartan), amongst others.I had listened to Gastro 1 when he said I didn't have the Big Cs -- Cancer, Crohn's, or Celiac. But now I felt kinda dumb for not following up on this note. Thanks to S, we started to look at the pain in my side not as a cause, but as a symptom. I went to my PCP and brought her in the loop and she said it was worth a shot.
So we did 2 blood draws (one for my normal blood tests, one for the celiac tests):
Yesterday evening, I was cuddled up with Jack when I got the message from my primary care doctor:
The celiac tests are abnormal. The TTG is weakly abnormal but the gliadin test are both abnormal. The reticular antigen is normal. All together I think this is consistent with Celiac...